Mesothelioma Hope has launched a new monthly support group designed for individuals diagnosed with mesothelioma and for families impacted by asbestos exposure, creating a structured space for participants to share experiences, ask questions, and access guided emotional support.
The program is led by Lindsey Rotnem, a licensed clinical social worker with an oncology-focused background, and is intended to address the isolation and uncertainty that often accompany a rare and complex diagnosis like mesothelioma.
Mesothelioma Hope was established by medical and legal advocates to help patients and caregivers find practical guidance and reliable resources during a period that can involve complicated treatment decisions, shifting financial realities, and significant emotional strain. The organization’s new support group is part of that effort, with sessions built to support both patients and loved ones navigating the day-to-day realities of care planning, symptom management, and the broader family impact of serious illness.
“Many people affected by mesothelioma describe the same challenge early on: they’re trying to absorb medical information while also managing fear, stress, and a sense of being overwhelmed,” said Lindsey Rotnem, LISW. “A support group can’t change the diagnosis, but it can reduce isolation and help people feel less alone as they work through the practical and emotional aspects of what comes next.”
The support group is structured as an ongoing initiative rather than a one-time event. Mesothelioma Hope says the sessions are intended to provide continuity for participants who may be adjusting to new treatment schedules, caring responsibilities, and evolving needs over time.
In addition to general peer discussion, the organization notes that sessions include opportunities for participants to raise concerns that commonly arise for families affected by asbestos exposure, including questions about support options, communication, and coping strategies for anxiety and uncertainty.
The group also includes participation from patient advocates Liz Logan, RN and Major Jonathan Nelson (Ret.), who are available during sessions to address specific questions and provide guidance tied to patient support. Mesothelioma Hope describes their role as helping participants navigate non-clinical challenges that can emerge alongside medical care, including day-to-day support needs, care coordination concerns, and questions about available resources.
“Patients and caregivers often need a place where they can ask questions without feeling rushed, and where they can hear from others who understand what this process can look like,” said Liz Logan, RN, a patient advocate with Mesothelioma Hope. “This group is meant to be a reliable point of connection, while also helping families identify practical next steps and support resources.”
The group held its first session on December 17 and will continue as a monthly recurring program with an emphasis on shared experience, guided discussion, and access to patient-advocacy support. The next support group is scheduled for Wednesday, January 21st, at 8 p.m. ET.
Outside of group sessions, Nurse Liz is available to speak one-on-one with patients and families who have questions about support resources and next steps. Major Jonathan Nelson is also available to assist veterans diagnosed with asbestos-related diseases by helping them access benefits and navigate the VA system. These individual conversations are intended to support those who may need more personalized guidance as they manage the medical, emotional, and practical challenges of mesothelioma.
For additional information about the Mesothelioma Hope support group and how to participate, please visit the organization’s website.
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For more information about Mesothelioma Hope, contact the company here:
Mesothelioma Hope
Chris Carberg
(855) 346-6101
chris@mesotheliomahope.com
1330 Boylston St Suite #400, Chestnut Hill, MA 02467
